PERCEPTIONS

People have perceptions that doctors know everything about muscular dystrophy.   A general practitioner will not be as knowledgeable about the disease due to the broad variety of issues that they deal with.  If you have any questions that you might possibly have a form of muscular dystrophy go directly to a neurologist who deals with muscular dystrophy and the related diseases.

Obviously, neurologists who specialty is neuromuscular diseases do know quite a lot about the various types of muscular dystrophy.  Actually, they are quite adept at diagnosing this disease.

Since there are no known cures available, I need to outline that this is your medical issue.  This is your fight, obviously you doctor can help, but you need to take the responsibility to beat this disease……no one else can do it.

This disease will beat you or you can beat this disease.   In other words…..blaze your own trail.  Do the things that are going to help you deal with this crippling rehabilitating disease.  Don’t believe that there is nothing that you can do to help you live with this!